A Systematic Review of What Barriers and Facilitators Prevent and Enable Physical Healthcare Services Access for Autistic Adults

David Mason, Barry Ingham, Anna Urbanowicz, Cos Michael, Heather Birtles, Marc Woodbury-Smith, Toni Brown, Ian James, Clare Scarlett, Christina Nicolaidis, Jeremy R. Parr

Research output: Contribution to journalArticle

Abstract

Autistic people are more likely to: be diagnosed with a range of physical health conditions (i.e. cardio-vascular disease); experience premature mortality (for most disease categories); and experience barriers to effectively accessing healthcare. This systematic review sought to identify studies that report on barriers and facilitators to physical healthcare access for autistic people. A total of 3111 records were screened and six studies were included: two quantitative, two qualitative, and two mixed-methodology studies. Patient-provider communication, sensory sensitivities, and executive functioning/planning issues emerged as important barriers to healthcare. Recommendations for clinicians and those planning services are discussed.

Original languageEnglish (US)
Pages (from-to)3387-3400
Number of pages14
JournalJournal of autism and developmental disorders
Volume49
Issue number8
DOIs
StatePublished - Aug 15 2019

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Delivery of Health Care
Premature Mortality
Vascular Diseases
Communication
Health

Keywords

  • Adult
  • Autism
  • Barriers
  • Healthcare access
  • Physical health
  • Sensory sensitivities

ASJC Scopus subject areas

  • Developmental and Educational Psychology

Cite this

A Systematic Review of What Barriers and Facilitators Prevent and Enable Physical Healthcare Services Access for Autistic Adults. / Mason, David; Ingham, Barry; Urbanowicz, Anna; Michael, Cos; Birtles, Heather; Woodbury-Smith, Marc; Brown, Toni; James, Ian; Scarlett, Clare; Nicolaidis, Christina; Parr, Jeremy R.

In: Journal of autism and developmental disorders, Vol. 49, No. 8, 15.08.2019, p. 3387-3400.

Research output: Contribution to journalArticle

Mason, D, Ingham, B, Urbanowicz, A, Michael, C, Birtles, H, Woodbury-Smith, M, Brown, T, James, I, Scarlett, C, Nicolaidis, C & Parr, JR 2019, 'A Systematic Review of What Barriers and Facilitators Prevent and Enable Physical Healthcare Services Access for Autistic Adults', Journal of autism and developmental disorders, vol. 49, no. 8, pp. 3387-3400. https://doi.org/10.1007/s10803-019-04049-2
Mason, David ; Ingham, Barry ; Urbanowicz, Anna ; Michael, Cos ; Birtles, Heather ; Woodbury-Smith, Marc ; Brown, Toni ; James, Ian ; Scarlett, Clare ; Nicolaidis, Christina ; Parr, Jeremy R. / A Systematic Review of What Barriers and Facilitators Prevent and Enable Physical Healthcare Services Access for Autistic Adults. In: Journal of autism and developmental disorders. 2019 ; Vol. 49, No. 8. pp. 3387-3400.
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