@article{ca88b67961a54b3abda647f3ecd4c079,
title = "A mixed method approach to understanding the impact of COVID-19 on patients with or at risk for aortic dissection",
abstract = "Aortic dissection (AD) is a life-threatening rare disease that occurs as a spontaneous tear in the wall of the aorta. Survivors of AD go on to have a chronic disease process that requires lifelong follow-up and management. Although the COVID-19 pandemic has strained health systems and impacted practice in the United States, the effects of these impacts on people living with or at risk for AD is not well understood. This mixed methods project examined the experiences of people in the AD community during the COVID-19 pandemic between March and October 2020. Results reveal that the AD community lacked clear guidance on the role aortic health status plays in COVID-19 risk and experienced significant disruptions in aortic healthcare. At the same time, the new expansion in access to medical care with telehealth conferred unforeseen benefits in the form of reduced barriers for access to specialized aortic health care.",
author = "{Aortic Dissection Collaborative} and Lee, {Jenney R.} and Courtney Segal and Jake Howitt and Timo Soderlund and Novelette Cotter and Melanie Case and Debra Trotter and Lawrence, {Sarah O.} and Sherene Shalhub and Josephine Grima and Kim Eagle and Kim Eagle and Eva Klein-Rogers and Karen Woo and Peter Byers and Dianna Milewicz and Firas Mussa and Melanie Case and Cotter, {Novelett E.} and David, {Carmen C.} and Mark Fasano and Richard Goldenberg and Jake Howitt and S{\"o}derlund, {Timo T.} and Debra Trotter and Asaf Rabin and Mattie Boehler-Tatman and Russo, {Melissa L.} and Drudi, {Laura Marie} and Marks, {Laura L.} and Yousif, {Maisoon D.} and Tabea Hoffstaetter and Ella Taubenfeld and Sreekanth Vemulapalli and Campos, {Chrisanne S.} and Lindsey Rusche and Pena, {Robert C.F.} and Mussa, {Firas F.} and Gretchen MacCarrick and Earl Goldsborough and Christeen Samuel and Lillian Xu and Mouawad, {Nicolas J.} and Yassa, {Eanas S.} and Xiaoyi Teng and Amani Politano and Jesse Teindl and Lara Bloom and Rebecca Gluck and O'Neal, {Meredith Ford}",
note = "Publisher Copyright: {\textcopyright} 2022 The Authors",
year = "2022",
month = mar,
doi = "10.1053/j.semvascsurg.2022.02.006",
language = "English (US)",
volume = "35",
pages = "100--109",
journal = "Seminars in Vascular Surgery",
issn = "0895-7967",
publisher = "W.B. Saunders Ltd",
number = "1",
}