FAMILY DISCLOSURE OF CANCER RISK--AN ETHNOGRAPHIC STUDY

    Project: Research project

    Description

    DESCRIPTION: The specific aims are to explore the effects and describe the experience within families of disclosure and non-disclosure of genetic risk information; to describe how information about genetic risk for breast cancer flows through a family network; to explore the significance of cultural and social class variations and other barriers or enhancers of information flow and its effects; and to explore the tensions between individual rights to privacy and moral obligations to disclose to biologic relatives. This last issue will be addressed by a policy group of major thinkers in the area of bioethics and genetic disclosure who will be convened to closely query the data collected and who will work on policy related interpretations.
    StatusFinished
    Effective start/end date7/1/989/30/06

    Funding

    • National Institutes of Health
    • National Institutes of Health: $56,390.00
    • National Institutes of Health
    • National Institutes of Health: $107,305.00
    • National Institutes of Health: $268,625.00

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    Disclosure
    Moral Obligations
    Bioethics
    Privacy
    Social Class
    Neoplasms
    Breast Neoplasms

    ASJC

    • Medicine(all)
    • Biochemistry, Genetics and Molecular Biology(all)