Robert Macauley

Research output

Research output per year 2003 2005 2012 2015 2019 2020 2021 2023 2023

• 39 Article
• 5 Short survey
• 4 Chapter
• 4 Editorial
• 9 More
  • 4 Review article
  • 3 Letter
  • 2 Comment/debate

Research output per year

Research output per year

Search results

• 2023

  Clinical Guidelines for Voluntarily Stopping Eating and Drinking (VSED)

  Wechkin, H., Macauley, R., Menzel, P. T., Reagan, P. L., Simmers, N. & Quill, T. E., Nov 2023, In: Journal of Pain and Symptom Management. 66, 5, p. e625-e631

  Research output: Contribution to journal › Article › peer-review

  Open Access

  • Drinking 100%
  • Eating 82%
  • Guidelines 70%
  • Patient Care Planning 37%
  • Quality of Life 35%
  3 Scopus citations

• Congruent Communication: Addressing Culture and Care for a Seriously Ill Rohingya Infant

  Treat, L. & Macauley, R., Mar 2023, In: Journal of Pain and Symptom Management. 65, 3, p. e225-e228

  Research output: Contribution to journal › Article › peer-review

  • Communication 100%
  • Shared Decision Making 41%
  • Patient-Centered Care 39%
  • Respect 35%
  • Palliative Care 32%

• Differences in US Regional Healthcare Allocation Guidelines During the COVID-19 Pandemic

  Sullivan, D. R., Sarma, N., Hough, C. L., Mularski, R. A., Osborne, M. L., Dirksen, K. M. & Macauley, R. C., Jan 2023, In: Journal of general internal medicine. 38, 1, p. 269-272 4 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

  • Pandemics 100%
  • Guidelines 60%
  • Delivery of Health Care 57%
  • Standard of Care 36%
  • Ethicists 28%
  1 Scopus citations

• Early and often: Promoting early integration of pediatric palliative care for seriously ill children with cancer

  Taub, S. & Macauley, R., Oct 2023, In: Current problems in cancer. 47, 5, 101023.

  Research output: Contribution to journal › Article › peer-review

  • Palliative Care 100%
  • Pediatrics 66%
  • Child 45%
  • Neoplasms 33%
  • Comorbidity 16%

• Responding to parental requests for nondisclosure to patients of diagnostic and prognostic information in the setting of serious disease

  COMMITTEE ON BIOETHICS, Oct 1 2023, In: Pediatrics. 152, 4, e2023063754.

  Research output: Contribution to journal › Article › peer-review

  • Disclosure 100%
  • Child 78%
  • Hope 51%
  • Respect 48%
  • Pediatricians 47%
• 2022

  Evolution of Investigating Informed Assent Discussions about CPR in Seriously Ill Patients

  Stapleton, R. D., Ford, D. W., Sterba, K. R., Nadig, N. R., Ades, S., Back, A. L., Carson, S. S., Cheung, K. L., Ely, J., Kross, E. K., Macauley, R. C., Maguire, J. M., Marcy, T. W., McEntee, J. J., Menon, P. R., Overstreet, A., Ritchie, C. S., Wendlandt, B., Ardren, S. S., Balassone, M., & 9 othersBurns, S., Choudhury, S., Diehl, S., McCown, E., Nielsen, E. L., Paul, S. R., Rice, C., Taylor, K. K. & Engelberg, R. A., Jun 2022, In: Journal of Pain and Symptom Management. 63, 6, p. e621-e632

  Research output: Contribution to journal › Article › peer-review

  Open Access

  • Cardiopulmonary Resuscitation 100%
  • Randomized Controlled Trials 27%
  • Family Physicians 22%
  • Chronic Disease 22%
  • Focus Groups 9%
  1 Scopus citations

• Pediatric Hospice and Palliative Care Services and Needs Across the Northwest United States

  Bogetz, J. F., Anderson, A., Holland, M. & Macauley, R., Jul 2022, In: Journal of Pain and Symptom Management. 64, 1, p. e7-e14

  Research output: Contribution to journal › Article › peer-review

  • Hospice Care 100%
  • Palliative Care 73%
  • Pediatrics 49%
  • Education 16%
  • Patient Care Planning 11%
  9 Scopus citations

• Social Determinants of Health May Predict End of Life Portable Orders for Life Sustaining Treatment Form Completion and Treatment Selections

  Gievers, L., Khaki, S., Dotson, A., Chen, Z., Macauley, R. C. & Tolle, S., Jun 2022, In: American Journal of Hospice and Palliative Medicine. 39, 6, p. 678-686 9 p.

  Research output: Contribution to journal › Article › peer-review

  • Social Determinants of Health 100%
  • Urbanization 20%
  • Cardiopulmonary Resuscitation 17%
  • Income 13%
  • Terminal Care 12%
  3 Scopus citations
• 2021

  A Mixed-Methods Quasi-Experimental Study on Perspectives Among Physicians and Nurses Regarding Use of Palliative Care Teams in the Pediatric Intensive Care Unit After Out-of-Hospital Cardiac Arrest

  Broman, A., Williams, C., Macauley, R. & Carney, P. A., Feb 2021, In: American Journal of Hospice and Palliative Medicine. 38, 2, p. 130-137 8 p.

  Research output: Contribution to journal › Article › peer-review

  • Out-of-Hospital Cardiac Arrest 100%
  • Pediatric Intensive Care Units 94%
  • Non-Randomized Controlled Trials 90%
  • Palliative Care 75%
  • Nurses 56%
  2 Scopus citations

• Epileptologists infrequently discuss the risk of intubation with patients with epilepsy in the United States

  Solomon, A. J., Macauley, R. & Spencer, D., Apr 1 2021, In: Annals of Palliative Medicine. 10, 4, p. 3626-3632 7 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

  • Intubation 100%
  • Epilepsy 87%
  • Advance Directives 69%
  • Neurologists 68%
  • Artificial Respiration 39%
  1 Scopus citations

• Ethical considerations in pediatricians' use of social media

  COMMITTEE ON BIOETHICS, COMMITTEE ON MEDICAL LIABILITY AND RISK MANAGEMENT, Mar 1 2021, In: Pediatrics. 147, 3, e2020049685.

  Research output: Contribution to journal › Article › peer-review

  Open Access

  • Social Media 100%
  • Pediatricians 84%
  • Professionalism 53%
  • Physicians 25%
  • Confidentiality 24%
  7 Scopus citations

• POLST Signature Requirements: Responding With Compassion While Ensuring Informed Consent

  Macauley, R. & Tolle, S., May 2021, In: American Journal of Hospice and Palliative Medicine. 38, 5, p. 428-431 4 p.

  Research output: Contribution to journal › Editorial › peer-review

  Open Access

  • Informed Consent 100%
  • Psychological Distress 50%
  • Documentation 48%
  • Intention 47%
  • Delivery of Health Care 31%

• Top Ten Tips Palliative Care Clinicians Should Know about Medical Decision-Making Capacity Assessment

  Ehrman, S. E., Norton, K. P., Karol, D. E., Weaver, M. S., Lockwood, B., Latimer, A., Scott, E., Jones, C. A. & Macauley, R., Apr 2021, In: Journal of palliative medicine. 24, 4, p. 599-604 6 p.

  Research output: Contribution to journal › Article › peer-review

  • Clinical Decision-Making 100%
  • Palliative Care 91%
  • Decision Making 58%
  • Geriatric Psychiatry 32%
  • Ethics 24%
  1 Scopus citations
• 2020

  Betting on CPR: A modern version of Pascal's Wager

  Harari, D. Y. & MacAuley, R. C., Feb 1 2020, In: Journal of medical ethics. 46, 2, p. 110-113 4 p.

  Research output: Contribution to journal › Article › peer-review

  • Renaissance 100%
  • Cardiopulmonary Resuscitation 95%
  • god 93%
  • divergence 82%
  • Clinical Practice 79%
  1 Scopus citations

• Children with intellectual and developmental disabilities as organ transplantation recipients

  COMMITTEE ON BIOETHICS & COUNCIL ON CHILDREN WITH DISABILITIES, May 2020, In: Pediatrics. 145, 5, e20200625.

  Research output: Contribution to journal › Article › peer-review

  Open Access

  • Developmental Disabilities 100%
  • Disabled Children 95%
  • Organ Transplantation 86%
  • Intellectual Disability 75%
  • Transplants 49%
  13 Scopus citations

• Diagnosis, management, and treatment of female genital mutilation or cutting in girls

  Young, J., Nour, N. M., Macauley, R. C., Narang, S. K. & Johnson-Agbakwu, C., Aug 1 2020, In: Pediatrics. 146, 2, e20201012.

  Research output: Contribution to journal › Article › peer-review

  Open Access

  • Female Circumcision 100%
  • Pediatrics 41%
  • Female Genitalia 30%
  • Pediatricians 26%
  • Western World 15%
  14 Scopus citations

• Ethical Challenges Arising in the COVID-19 Pandemic: An Overview from the Association of Bioethics Program Directors (ABPD) Task Force

  The COVID-19 Task Force of the Association of Bioethics Program Directors (ABPD), Jul 2 2020, In: American Journal of Bioethics. 20, 7, p. 15-27 13 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

  • Bioethics 100%
  • bioethics 79%
  • Pandemics 76%
  • Advisory Committees 76%
  • director 60%
  96 Scopus citations

• Fertility preservation for pediatric and adolescent patients with cancer: Medical and ethical considerations

  COMMITTEE ON BIOETHICS, Section on Hematology/Oncology & Section on Surgery, Mar 1 2020, In: Pediatrics. 145, 3, e20193994.

  Research output: Contribution to journal › Review article › peer-review

  Open Access

  • Fertility Preservation 100%
  • Infertility 68%
  • Pediatrics 47%
  • Neoplasms 23%
  • Assisted Reproductive Techniques 22%
  38 Scopus citations

• Professional Obligations of Clinicians and Institutions in Pediatric Care Settings during a Public Health Crisis: A Review

  Laventhal, N. T., Basak, R. B., Dell, M. L., Elster, N., Geis, G., Macauley, R. C., Mercurio, M. R., Opel, D. J., Shalowitz, D. I., Statter, M. B. & Diekema, D. S., Sep 2020, In: Journal of Pediatrics. 224, p. 10-15 6 p.

  Research output: Contribution to journal › Editorial › peer-review

  Open Access
  1 Scopus citations

• Provider perspective on the role of palliative care in hypoplastic left heart syndrome

  Lowenstein, S., MacAuley, R., Perko, K. & Ronai, C., 2020, In: Cardiology in the young. 30, 3, p. 377-382 6 p.

  Research output: Contribution to journal › Article › peer-review

  • Hypoplastic Left Heart Syndrome 100%
  • Palliative Care 69%
  • Prenatal Care 48%
  • Pediatrics 11%
  • Continuity of Patient Care 10%
  6 Scopus citations

• The ethics of creating a resource allocation strategy during the COVID-19 Pandemic

  Laventhal, N., Basak, R., Dell, M. L., Diekema, D., Elster, N., Geis, G., Mercurio, M., Opel, D., Shalowitz, D., Statter, M. & MacAuley, R., Jul 2020, In: Pediatrics. 146, 1, e20201243.

  Research output: Contribution to journal › Article › peer-review

  • Resource Allocation 100%
  • Pandemics 89%
  • Ethics 85%
  • Standard of Care 54%
  • Disaster Planning 45%
  51 Scopus citations
• 2019

  Institutional Ethics committees

  COMMITTEE ON BIOETHICS, May 2019, In: Pediatrics. 143, 5, Y.

  Research output: Contribution to journal › Article › peer-review

  Open Access

  • Ethics Committees 100%
  • Ethics Consultation 34%
  • Institutional Ethics 33%
  • Clinical Ethics 31%
  • Bioethics 28%
  15 Scopus citations

• Pediatric Palliative Care in the Multicultural Context: Findings From a Workshop Conference

  Rosenberg, A. R., Bona, K., Coker, T., Feudtner, C., Houston, K., Ibrahim, A., Macauley, R., Wolfe, J. & Hays, R., Apr 2019, In: Journal of Pain and Symptom Management. 57, 4, p. 846-855.e2

  Research output: Contribution to journal › Article › peer-review

  Open Access

  • Palliative Care 100%
  • Pediatrics 66%
  • Education 65%
  • Communication 58%
  • Congresses 51%
  15 Scopus citations

• Perioperative complications chapter: Shared decision-making and informed consent

  Hart, W. K., Macauley, R. C., Hansen, D. A. & Tsai, M. H., Mar 19 2019, Catastrophic Perioperative Complications and Management: A Comprehensive Textbook. Springer International Publishing, p. 397-406 10 p.

  Research output: Chapter in Book/Report/Conference proceeding › Chapter

  • Shared Decision Making 100%
  • Informed Consent 78%
  • Ambulatory Surgical Procedures 25%
  • Decision Making 22%
  • Coercion 19%

• Surgical overlap: An ethical approach to empirical ambiguity

  Hyson, P., Macauley, R., Sexton, K. & Sanford, J., Dec 1 2019, In: International Anesthesiology Clinics. 57, 1, p. 18-31 14 p.

  Research output: Contribution to journal › Article › peer-review
  1 Scopus citations

• The Limits of “Life-Limiting”

  Macauley, R. C., Jun 2019, In: Journal of Pain and Symptom Management. 57, 6, p. 1176-1181 6 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

  • Palliative Care 100%
  • Palliative Medicine 29%
  • Quality of Life 26%
  • Hospices 25%
  • Pediatrics 13%
  3 Scopus citations

• The Selfishness of Pediatric Palliative Care

  MacAuley, R., Nov 2019, In: Journal of palliative medicine. 22, 11, p. 1473-1474 2 p.

  Research output: Contribution to journal › Short survey › peer-review

• To trach or not to trach, that is the question

  Macauley, R., Feb 2019, In: Paediatric Respiratory Reviews. 29, p. 9-13 5 p.

  Research output: Contribution to journal › Review article › peer-review

  • Tracheostomy 100%
  • Neuromuscular Diseases 27%
  • Recovery of Function 23%
  • Palliative Care 21%
  • Artificial Respiration 20%
  9 Scopus citations
• 2018

  Determining code status on inpatient psychiatry

  Harari, D. Y. & Macauley, R. C., Mar 2018, In: General Hospital Psychiatry. 51, p. 1-4 4 p.

  Research output: Contribution to journal › Editorial › peer-review

• Interpretation of do not attempt resuscitation orders for children requiring anesthesia and surgery

  Section on Surgery, Section on Anesthesiology and Pain Medicine, Committee on Bioethics, May 2018, In: Pediatrics. 141, 5, e20180598.

  Research output: Contribution to journal › Article › peer-review

  Open Access

  • Resuscitation Orders 100%
  • Anesthesia 54%
  • Informed Consent 44%
  • Resuscitation 44%
  • Child 29%
  5 Scopus citations
• 2017

  Guidance on forgoing life-sustaining medical treatment

  COMMITTEE ON BIOETHICS, SECTION ON HOSPICE AND PALLIATIVE MEDICINE, COMMITTEE ON CHILD ABUSE AND NEGLECT, Sep 2017, In: Pediatrics. 140, 3, e20171905.

  Research output: Contribution to journal › Article › peer-review

  Open Access

  • Decision Making 100%
  • Medical Staff 90%
  • Pastoral Care 67%
  • Communication 60%
  • Patient Care Planning 55%
  85 Scopus citations

• Management of hemoglobin variants detected incidentally in HbA_1c testing: A common problem currently lacking a standard approach

  on behalf of the D2d Research Group, Feb 1 2017, In: Diabetes care. 40, 2, p. e8-e9

  Research output: Contribution to journal › Letter › peer-review

  Open Access
  5 Scopus citations
• 2016

  Covert Medications: Act of Compassion or Conspiracy of Silence?

  Macauley, R. C., Dec 1 2016, In: The Journal of clinical ethics. 27, 4, p. 298-307 10 p.

  Research output: Contribution to journal › Article › peer-review

  • medication 100%
  • act 77%
  • Dementia 65%
  • dementia 58%
  • Advance Care Planning 54%
  2 Scopus citations

• Measuring Quality in Ethics Consultation

  Bliss, S. E., Oppenlander, J., Dahlke, J. M., Meyer, G. J., Williford, E. M. & Macauley, R. C., Jun 1 2016, In: The Journal of clinical ethics. 27, 2, p. 163-175 13 p.

  Research output: Contribution to journal › Article › peer-review

  • Ethics Consultation 100%
  • Clinical Ethics 61%
  • Quality Improvement 39%
  • Health Care Quality Assurance 34%
  • Bioethics 28%
  9 Scopus citations

• The Effectiveness of Standardized Patient Simulation in Training Hospital Ethics Committees

  Harari, D. Y. & Macauley, R. C., Mar 1 2016, In: The Journal of clinical ethics. 27, 1, p. 14-20 7 p.

  Research output: Contribution to journal › Article › peer-review

  • Clinical Ethics Committees 100%
  • Patient Simulation 95%
  • Simulation Training 88%
  • ethics committee 78%
  • Committee Membership 62%
  6 Scopus citations
• 2015

  Attitudes, practices, and training on informed consent for transfusions and procedures: A survey of medical students and physicians

  Vossoughi, S. R., Macauley, R., Sazama, K. & Fung, M. K., Aug 2015, In: American journal of clinical pathology. 144, 2, p. 315-321 7 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

  • Medical Students 100%
  • Informed Consent 98%
  • Physicians 63%
  • Patient Simulation 20%
  • Guidelines 18%
  13 Scopus citations

• Balancing Issues of Medical Futility. Leaders must ensure policies exist and are followed

  Nelson, W. A. & Macauley, R. C., Mar 1 2015, In: Healthcare executive. 30, 2, p. 48, 50-1

  Research output: Contribution to journal › Article › peer-review
  1 Scopus citations

• God at the bedside: Shadowlands

  Macauley, R. C., May 27 2015, The Picture of Health: Medical Ethics and the Movies. Oxford University Press, p. 1-5 5 p.

  Research output: Chapter in Book/Report/Conference proceeding › Chapter

  • Shadowland 100%
  • C. S. Lewis 77%
  • True Story 36%
  • Spirituality 34%
  • Cancer 33%

• Hope and persuasion by physicians during informed consent

  Macauley, R., May 1 2015, In: Journal of Pain and Symptom Management. 49, 5, p. 970-971 2 p.

  Research output: Contribution to journal › Short survey › peer-review

  Open Access

• The Least Bad Option: Unilateral Extubation after Declaration of Death by Neurological Criteria

  Bliss, S. E. & Macauley, R. C., Sep 1 2015, In: The Journal of clinical ethics. 26, 3, p. 260-265 6 p.

  Research output: Contribution to journal › Article › peer-review

  • clinical team 100%
  • exceptional circumstances 95%
  • death 94%
  • clinical staff 91%
  • organ donation 86%

• Turn of Phrase

  Macauley, R., Feb 1 2015, In: Journal of palliative medicine. 18, 2, p. 197-199 3 p.

  Research output: Contribution to journal › Short survey › peer-review
• 2014

  Experiences of parents who continue a pregnancy with trisomy diagnosis

  MacAuley, R., Sep 1 2014, In: Journal of Pain and Symptom Management. 48, 3, p. 489-490 2 p.

  Research output: Contribution to journal › Short survey › peer-review

  Open Access

• The Ethics of Cultivated Gratitude

  Macauley, R., Dec 1 2014, In: HEC Forum. 26, 4, p. 343-348 6 p.

  Research output: Contribution to journal › Article › peer-review

  • Ethics 100%
  • Tissue Donors 77%
  • moral philosophy 72%
  • preferential treatment 69%
  • fundraising 62%
  5 Scopus citations

• You keep using that term

  Macauley, R., Jul 1 2014, In: Journal of palliative medicine. 17, 7, p. 747-748 2 p.

  Research output: Contribution to journal › Letter › peer-review
• 2013

  Best practices for pediatric palliative cancer care: A primer for clinical providers

  Levine, D., Lam, C. G., Cunningham, M. J., Remke, S., Chrastek, J., Klick, J., Macauley, R. & Baker, J. N., Sep 1 2013, In: Journal of Supportive Oncology. 11, 3, p. 114-125 12 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access

  • Palliative Care 100%
  • Practice Guidelines 97%
  • Pediatrics 66%
  • Neoplasms 33%
  • Patient Care 32%
  35 Scopus citations

• The analysis and resolution of ethical dilemmas

  Macauley, R. C., 2013, Handbook of Clinical Neurology. Elsevier B.V., p. 11-23 13 p. (Handbook of Clinical Neurology; vol. 118).

  Research output: Chapter in Book/Report/Conference proceeding › Chapter

  • Ethical Analysis 100%
  • Ethical Review 97%
  • Neurology 68%
  • Medicine 47%
  • Technology 42%
  3 Scopus citations
• 2012

  Pediatric palliative care after hours: Phone support for family caregivers

  MacAuley, R., Nov 2012, In: Journal of Pain and Symptom Management. 44, 5, p. 793-794 2 p.

  Research output: Contribution to journal › Short survey › peer-review

  Open Access

• Responsibility for patients after the handoff

  Macauley, R., 2012, In: Virtual Mentor. 14, 5, p. 373-377 5 p.

  Research output: Contribution to journal › Article › peer-review

  Open Access
  2 Scopus citations

• The role of the principle of double effect in ethics education at US medical schools and its potential impact on pain management at the end of life

  Macauley, R., Mar 2012, In: Journal of medical ethics. 38, 3, p. 174-178 5 p.

  Research output: Contribution to journal › Article › peer-review

  • Double Effect Principle 100%
  • Principle of Double Effect 80%
  • End of Life 63%
  • Pain 61%
  • Medical School 56%
  5 Scopus citations

• Weighing potential candidates for kidney transplant: The ethics of exclusion for elevated body mass index

  MacAuley, R., Dec 1 2012, In: Progress in Transplantation. 22, 4, p. 369-373 5 p.

  Research output: Contribution to journal › Article › peer-review

  • Ethics 100%
  • Body Mass Index 70%
  • Transplants 61%
  • Kidney 52%
  • Delayed Graft Function 33%
  1 Scopus citations