Institute on Development & Disability

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Review article

Post-Intensive-Care Syndrome for the Pediatric Neurologist

Hartman, M. E., Williams, C. N., Hall, T. A., Bosworth, C. C. & Piantino, J. A., 2020, (Accepted/In press) In : Pediatric Neurology.

Research output: Contribution to journalReview article

2 Scopus citations

Prevention of cisplatin-induced ototoxicity in children and adolescents with cancer: a clinical practice guideline

Freyer, D. R., Brock, P. R., Chang, K. W., Dupuis, L. L., Epelman, S., Knight, K., Mills, D., Phillips, R., Potter, E., Risby, D., Simpkin, P., Sullivan, M., Cabral, S., Robinson, P. D. & Sung, L., Feb 2020, In : The Lancet Child and Adolescent Health. 4, 2, p. 141-150 10 p.

Research output: Contribution to journalReview article

2019
4 Scopus citations

Interventions for cisplatin-induced hearing loss in children and adolescents with cancer

Freyer, D. R., Brock, P., Knight, K., Reaman, G., Cabral, S., Robinson, P. D. & Sung, L., Aug 2019, In : The Lancet Child and Adolescent Health. 3, 8, p. 578-584 7 p.

Research output: Contribution to journalReview article

2 Scopus citations

Postintensive Care Syndrome in Pediatric Critical Care Survivors: Therapeutic Options to Improve Outcomes After Acquired Brain Injury

Williams, C. N., Hartman, M. E., Guilliams, K. P., Guerriero, R. M., Piantino, J. A., Bosworth, C. C., Leonard, S. S., Bradbury, K., Wagner, A. & Hall, T. A., Oct 1 2019, In : Current Treatment Options in Neurology. 21, 10, 49.

Research output: Contribution to journalReview article

1 Scopus citations
10 Scopus citations
2018

A Model of the Intersection of Pain and Opioid Misuse in Children and Adolescents

Dash, G. F., Wilson, A. C., Morasco, B. J. & Feldstein Ewing, S. W., Sep 1 2018, In : Clinical Psychological Science. 6, 5, p. 629-646 18 p.

Research output: Contribution to journalReview article

4 Scopus citations
2017

An overview of voice conversion systems

Mohammadi, S. H. & Kain, A., Apr 1 2017, In : Speech Communication. 88, p. 65-82 18 p.

Research output: Contribution to journalReview article

72 Scopus citations

Attached to a diagnosis: The quandary of social deficits and reactive attachment disorder

Phelps, R., Eisert, D., Schulz, S. & Augustyn, M., 2017, In : Journal of Developmental and Behavioral Pediatrics. 38, 2, p. S3-S5

Research output: Contribution to journalReview article

Cognitive and adaptive measurement endpoints for clinical trials in mucopolysaccharidoses types I, II, and III: A review of the literature

Janzen, D., Delaney, K. A. & Shapiro, E. G., Jun 2017, In : Molecular Genetics and Metabolism. 121, 2, p. 57-69 13 p.

Research output: Contribution to journalReview article

9 Scopus citations

Cognitive endpoints for therapy development for neuronopathic mucopolysaccharidoses: Results of a consensus procedure

van der Lee, J. H., Morton, J., Adams, H. R., Clarke, L., Ebbink, B. J., Escolar, M. L., Giugliani, R., Harmatz, P., Hogan, M., Jones, S., Kearney, S., Muenzer, J., Rust, S., Semrud-Clikeman, M., Wijburg, F. A., Yu, Z. F., Janzen, D. & Shapiro, E., Jun 2017, In : Molecular Genetics and Metabolism. 121, 2, p. 70-79 10 p.

Research output: Contribution to journalReview article

13 Scopus citations

Early Identification of Young Children with Autism Spectrum Disorder

Nickel, R. E. & Huang-Storms, L., Jan 1 2017, In : Indian Journal of Pediatrics. 84, 1, p. 53-60 8 p.

Research output: Contribution to journalReview article

5 Scopus citations

Parental influence on a childs autistic traits

Phelps, R., Nickel, R., Eisert, D. & Stein, M. T., Jan 1 2017, In : Journal of Developmental and Behavioral Pediatrics. 38, 2, p. S73-S75

Research output: Contribution to journalReview article

1 Scopus citations

Partnering with Insurers in Caring for the Most Vulnerable Youth with Diabetes: NICH as an Integrator

Barry, S. A., Teplitsky, L., Wagner, D. V., Shah, A., Rogers, B. & Harris, M., Apr 1 2017, In : Current Diabetes Reports. 17, 4, 26.

Research output: Contribution to journalReview article

4 Scopus citations

Rehabilitation research at the national institutes of health: Moving the field forward (executive summary)

Frontera, W. R., Bean, J. F., Damiano, D., Ehrlich-Jones, L., Fried-Oken, M., Jette, A., Jung, R., Lieber, R. L., Malec, J. F., Mueller, M. J., Ottenbacher, K. J., Tansey, K. E. & Thompson, A., May 1 2017, In : American Journal of Occupational Therapy. 71, 3, 713003.

Research output: Contribution to journalReview article

4 Scopus citations

The curse of the dolphins: Cognitive decline and psychosis

Phelps, R., Tsai, A., Hagen, A., Pinter, J., Smith, R. & Stein, M. T., Jan 1 2017, In : Journal of Developmental and Behavioral Pediatrics. 38, 2, p. S16-S18

Research output: Contribution to journalReview article

2016

Transmission of risk from parents with chronic pain to offspring: An integrative conceptual model

Stone, A. L. & Wilson, A., Aug 10 2016, In : Pain. 157, 12, p. 2628-2639 12 p.

Research output: Contribution to journalReview article

30 Scopus citations
2015
5 Scopus citations

Supporting communication for patients with neurodegenerative disease

Fried-Oken, M., Mooney, A. & Peters, B., Aug 22 2015, In : NeuroRehabilitation. 37, 1, p. 69-87 19 p.

Research output: Contribution to journalReview article

26 Scopus citations

Systematic review on intensive interdisciplinary pain treatment of children with chronic pain

Hechler, T., Kanstrup, M., Holley, A. L., Simons, L. E., Wicksell, R., Hirschfeld, G. & Zernikow, B., Jul 1 2015, In : Pediatrics. 136, 1, p. 115-127 13 p.

Research output: Contribution to journalReview article

72 Scopus citations

Treating the Most Vulnerable and Costly in Diabetes

Wagner, D. V., Stoeckel, M., E. Tudor, M. & Harris, M. A., Apr 16 2015, In : Current diabetes reports. 15, 6

Research output: Contribution to journalReview article

17 Scopus citations
2014

Barriers to health care among people with disabilities who are members of underserved racial/ethnic groups: A scoping review of the literature

Peterson-Besse, J. J., Walsh, E. S., Horner-Johnson, W., Goode, T. D. & Wheeler, B., Jan 1 2014, In : Medical care. 52, p. S51-S63

Research output: Contribution to journalReview article

15 Scopus citations

Clinical preventive service use disparities among subgroups of people with disabilities: A scoping review

The Expert Panel on Health Disparities among Individuals with Disabilities, Jan 1 2014, In : Disability and Health Journal. 7, 4, p. 373-393 21 p.

Research output: Contribution to journalReview article

12 Scopus citations

Concussion guidelines step 1: Systematic review of prevalent indicators

Carney, N., Ghajar, J., Jagoda, A., Bedrick, S., Davis-O'Reilly, C., Du Coudray, H., Hack, D., Helfand, N., Huddleston, A., Nettleton, T. & Riggio, S., Sep 2014, In : Neurosurgery. 75, SUPPL. 1, p. S3-S15

Research output: Contribution to journalReview article

49 Scopus citations
49 Scopus citations

Executive summary of concussion guidelines step 1: Systematic review of prevalent indicators

Carney, N., Ghajar, J., Jagoda, A., Bedrick, S., Davis-O'Reilly, C., Du Coudray, H., Hack, D., Helfand, N., Huddleston, A., Nettleton, T. & Riggio, S., Sep 2014, In : Neurosurgery. 75, SUPPL. 1, p. S1-S2

Research output: Contribution to journalReview article

8 Scopus citations

Health outcome disparities among subgroups of people with disabilities: A scoping review

Rowland, M., Peterson-Besse, J., Dobbertin, K., Walsh, E. S. & Horner-Johnson, W., Apr 2014, In : Disability and Health Journal. 7, 2, p. 136-150 15 p.

Research output: Contribution to journalReview article

11 Scopus citations

ICF and ICF-CY lessons learned: Pandora's box of personal factors

Simeonsson, R. J., Lollar, D., Björck-Åkesson, E., Granlund, M., Brown, S. C., Zhuoying, Q., Gray, D. & Pan, Y., Dec 1 2014, In : Disability and Rehabilitation. 36, 25, p. 2187-2194 8 p.

Research output: Contribution to journalReview article

25 Scopus citations

Life course perspective: Evidence for the role of nutrition

Herman, D. R., Taylor Baer, M., Adams, E., Cunningham-Sabo, L., Duran, N., Johnson, D. B. & Yakes, E., Feb 1 2014, In : Maternal and child health journal. 18, 2, p. 450-461 12 p.

Research output: Contribution to journalReview article

27 Scopus citations

Parallel tracks: Reflections on the need for collaborative health disparities research on race/ethnicity and disability

Goode, T. D., Carter-Pokras, O. D., Horner-Johnson, W. & Yee, S., 2014, In : Medical care. 52, p. S3-S8

Research output: Contribution to journalReview article

10 Scopus citations

Promoting a new research agenda: Health disparities research at the intersection of disability, race, and ethnicity

Horner-Johnson, W., Fujiura, G. T. & Goode, T. D., Jan 1 2014, In : Medical care. 52, p. S1-S2

Research output: Contribution to journalReview article

9 Scopus citations

Psychological therapies for the management of chronic and recurrent pain in children and adolescents

Eccleston, C., Palermo, T. M., Williams, A. C. D. C., Lewandowski Holley, A., Morley, S., Fisher, E. & Law, E., May 5 2014, In : Cochrane Database of Systematic Reviews. 2017, 10, CD003968.

Research output: Contribution to journalReview article

104 Scopus citations

Systematic review and meta-analysis of behavioral interventions for fecal incontinence with constipation

Freeman, K. A., Riley, A., Duke, D. C. & Fu, R., Sep 2014, In : Journal of Pediatric Psychology. 39, 8, p. 887-902 16 p.

Research output: Contribution to journalReview article

23 Scopus citations
2013

Applications of laboratory pain methodologies in research with children and adolescents: Emerging research trends

Wilson, A. C., Holley, A. L. & Palermo, T. M., Aug 2013, In : Pain. 154, 8, p. 1166-1169 4 p.

Research output: Contribution to journalReview article

7 Scopus citations

A system biology approach to identify regulatory pathways underlying the neuroendocrine control of female puberty in rats and nonhuman primates

Lomniczi, A., Wright, H., Castellano, J. M., Sonmez, K. & Ojeda, S. R., Jul 1 2013, In : Hormones and Behavior. 64, 2, p. 175-186 12 p.

Research output: Contribution to journalReview article

30 Scopus citations

Speech and Language processing as assistive technologies

McCoy, K. F., Arnott, J. L., Ferres, L., Fried-Oken, M. & Roark, B., May 21 2013, In : Computer Speech and Language. 27, 6, p. 1143-1146 4 p.

Research output: Contribution to journalReview article

10 Scopus citations
2012

Access interface strategies

Fager, S., Beukelman, D. R., Fried-Oken, M., Jakobs, T. & Baker, J., Mar 1 2012, In : Assistive Technology. 24, 1, p. 25-33 9 p.

Research output: Contribution to journalReview article

52 Scopus citations

Augmentative and alternative communication for people with progressive neuromuscular disease

Ball, L. J., Fager, S. & Fried-Oken, M., Aug 1 2012, In : Physical Medicine and Rehabilitation Clinics of North America. 23, 3, p. 689-699 11 p.

Research output: Contribution to journalReview article

15 Scopus citations

Diabetes resilience: A model of risk and protection in type 1 diabetes

Hilliard, M. E., Harris, M. A. & Weissberg-Benchell, J., Dec 1 2012, In : Current diabetes reports. 12, 6, p. 739-748 10 p.

Research output: Contribution to journalReview article

71 Scopus citations

Health care needs of children with down syndrome and impact of health system performance on children and their families

Phelps, R. A., Pinter, J. D., Lollar, D. J., Medlen, J. G. & Bethell, C. D., Apr 1 2012, In : Journal of Developmental and Behavioral Pediatrics. 33, 3, p. 214-220 7 p.

Research output: Contribution to journalReview article

21 Scopus citations

Platinum-induced ototoxicity in children: A consensus review on mechanisms, predisposition, and protection, including a new International Society of Pediatric Oncology Boston ototoxicity scale

Brock, P. R., Knight, K. R., Freyer, D. R., Campbell, K. C. M., Steyger, P. S., Blakley, B. W., Rassekh, S. R., Chang, K. W., Fligor, B. J., Rajput, K., Sullivan, M. & Neuwelt, E. A., Jul 1 2012, In : Journal of Clinical Oncology. 30, 19, p. 2408-2417 10 p.

Research output: Contribution to journalReview article

186 Scopus citations

Psychological therapies for the management of chronic and recurrent pain in children and adolescents.

Eccleston, C., Palermo, T. M., de C Williams, A. C., Lewandowski, A., Morley, S., Fisher, E. & Law, E., 2012, In : Cochrane database of systematic reviews (Online). 12, p. CD003968

Research output: Contribution to journalReview article

75 Scopus citations

Pumpers, skypers, surfers and texters: Technology to improve the management of diabetes in teenagers

Harris, M. A., Hood, K. K. & Mulvaney, S. A., Nov 2012, In : Diabetes, Obesity and Metabolism. 14, 11, p. 967-972 6 p.

Research output: Contribution to journalReview article

29 Scopus citations
2011

Aging with a disability: A systematic review of cardiovascular disease and osteoporosis among women aging with a physical disability

Rosso, A. L., Wisdom, J. P., Horner-Johnson, W., McGee, M. G. & Michael, Y. L., Jan 1 2011, In : Maturitas. 68, 1, p. 65-72 8 p.

Research output: Contribution to journalReview article

9 Scopus citations

Evidence-based review of subjective pediatric sleep measures

Lewandowski, A. S., Toliver-Sokol, M. & Palermo, T. M., Aug 2011, In : Journal of pediatric psychology. 36, 7, p. 780-793 14 p.

Research output: Contribution to journalReview article

151 Scopus citations

Obesity and disability: Time to act

Froehlich-Grobe, K. & Lollar, D., Nov 2011, In : American journal of preventive medicine. 41, 5, p. 541-545 5 p.

Research output: Contribution to journalReview article

20 Scopus citations

Overweight and obesity in hemophilia: A systematic review of the literature

Wong, T. E., Majumdar, S., Adams, E., Bergman, S., Damiano, M. L., Deutsche, J. & Recht, M., Dec 1 2011, In : American journal of preventive medicine. 41, 6 SUPPL.4, p. S369-S375

Research output: Contribution to journalReview article

32 Scopus citations

Sleep Problems in Children and Adolescents with Common Medical Conditions

Lewandowski, A. S., Ward, T. M. & Palermo, T. M., Jun 1 2011, In : Pediatric clinics of North America. 58, 3, p. 699-713 15 p.

Research output: Contribution to journalReview article

43 Scopus citations