Institute on Development &amp; Disability &ndash; Publications

2019

Adverse Childhood Experiences in Mothers With Chronic Pain and Intergenerational Impact on Children

Dennis, C. H., Clohessy, D. S., Stone, A. L., Darnall, B. D. & Wilson, A., Jan 1 2019, In : Journal of Pain.

Research output: Contribution to journal › Article

Chronic Pain

Mothers

Depression

Pain

Divorce

All systems go: An ecological perspective of behavioral health for youth with type 1 diabetes

Wagner, D. V., Koskela-Staples, N., Harris, M. & Barry, S. A., Mar 1 2019, In : Families, Systems and Health. 37, 1, p. 10-29 20 p.

Research output: Contribution to journal › Article

Type 1 Diabetes Mellitus

Health

Research Personnel

Population

Health Resources

An online community of practice to improve intervention for individuals with complex communication needs

Quinn, E. D., Cook, A. & Rowland, C., Jan 1 2019, In : AAC: Augmentative and Alternative Communication.

Research output: Contribution to journal › Article

Communication

Information Dissemination

Communication Disorders

Professional Practice

Language

Application of an intersectional framework to understanding the association of disability and sexual orientation with suicidal ideation among Oregon Teens

Higgins Tejera, C., Horner-Johnson, W. & Andresen, E., Jan 1 2019, In : Disability and Health Journal.

Research output: Contribution to journal › Article

Suicidal Ideation

Sexual Behavior

Suicide

Heterosexuality

Cause of Death

2 Citations (Scopus)

Challenges and opportunities in augmentative and alternative communication: Research and technology development to enhance communication and participation for individuals with complex communication needs

Light, J., McNaughton, D., Beukelman, D., Fager, S. K., Fried-Oken, M., Jakobs, T. & Jakobs, E., Jan 1 2019, (Accepted/In press) In : AAC: Augmentative and Alternative Communication.

Research output: Contribution to journal › Article

Communication

Research

Industrial Development

Social Media

Technology

Differences in Prenatal Care by Presence and Type of Maternal Disability

Horner-Johnson, W., Biel, F. M., Caughey, A. & Darney, B., Mar 1 2019, In : American journal of preventive medicine. 56, 3, p. 376-382 7 p.

Research output: Contribution to journal › Article

Prenatal Care

Mothers

Developmental Disabilities

Intellectual Disability

Hearing

Ethical implications for providers regarding cannabis use in children with autism spectrum disorders

Duvall, S., Lindly, O., Zuckerman, K., Msall, M. E. & Weddle, M., Feb 1 2019, In : Pediatrics. 143, 2, e20180558.

Research output: Contribution to journal › Article

Cannabis

Ethical Analysis

Harm Reduction

Self-Injurious Behavior

Information Dissemination

1 Citation (Scopus)

First, Do No Harm: Improving Access in Autism Diagnostic Assessments for Children Without Exacerbating Inequities in Care

Phelps, R. & Coker, T. R., Apr 1 2019, In : Journal of developmental and behavioral pediatrics : JDBP. 40, 3, p. 217-218 2 p.

Research output: Contribution to journal › Article

Autistic Disorder

Internet networks as a source of social support for women with mobility disabilities during pregnancy

Peterson-Besse, J. J., Knoll, J. E. & Horner-Johnson, W., Jan 1 2019, In : Disability and Health Journal.

Research output: Contribution to journal › Article

Social Support

Internet

Pregnancy

Health Personnel

Mothers

Medical indications for primary cesarean delivery in women with and without disabilities

Biel, F., Darney, B., Caughey, A. & Horner-Johnson, W., Jan 1 2019, In : Journal of Maternal-Fetal and Neonatal Medicine.

Research output: Contribution to journal › Article

Odds Ratio

Trial of Labor

Confidence Intervals

Logistic Models

Parturition

4 Citations (Scopus)

New and emerging access technologies for adults with complex communication needs and severe motor impairments: State of the science

Koch Fager, S., Fried-Oken, M., Jakobs, T. & Beukelman, D. R., Jan 1 2019, (Accepted/In press) In : AAC: Augmentative and Alternative Communication.

Research output: Contribution to journal › Article

Technology

Equipment and Supplies

Research

Fatigue

No Sex Differences in Cognitive Ability in Young Children with Autism Spectrum Disorder

Duvall, S., Huang-Storms, L., Presmanes Hill, A., Myers, J. & Fombonne, E., Jan 1 2019, In : Journal of autism and developmental disorders.

Research output: Contribution to journal › Article

Aptitude

Sex Characteristics

Learning

Autistic Disorder

Cognition

PRISM: a brief screening tool to identify risk in parents of youth with chronic pain

Simons, L. E., Holley, A., Phelps, E. & Wilson, A., Feb 1 2019, In : Pain. 160, 2, p. 367-374 8 p.

Research output: Contribution to journal › Article

Chronic Pain

Parents

Pain

Catastrophization

Quality of Life

Shining a Light on Reproductive Health Care Needs of Women with Disabilities

Horner-Johnson, W., Jul 1 2019, In : Journal of women's health (2002). 28, 7, p. 888-889 2 p.

Research output: Contribution to journal › Article

Reproductive Health

Delivery of Health Care

Somatic Symptoms in Pediatric Patients With Chronic Pain: Proposed Clinical Reference Points for the Children's Somatic Symptoms Inventory (Formerly the Children's Somatization Inventory)

Stone, A. L., Walker, L. S., Heathcote, L. C., Hernandez, J. M., Basch, M. C., Wilson, A. & Simons, L. E., Jan 1 2019, In : Journal of Pain.

Research output: Contribution to journal › Article

Chronic Pain

Pediatrics

Equipment and Supplies

Catastrophization

Pain

1 Citation (Scopus)

The (Parental) Whole Is Greater Than the Sum of Its Parts: A Multifactorial Model of Parent Factors in Pediatric Chronic Pain

Poppert Cordts, K. M., Stone, A. L., Beveridge, J. K., Wilson, A. & Noel, M., Jan 1 2019, In : Journal of Pain.

Research output: Contribution to journal › Article

Chronic Pain

Pediatrics

Pain

Psychology

Parents

The role of sleep quality on the relationship between posttraumatic stress symptoms and pain in women

Aaron, R., Noel, M., Dudeney, J., Wilson, A., Holley, A. & Palermo, T., Jan 1 2019, In : Journal of Behavioral Medicine.

Research output: Contribution to journal › Article

Sleep

Pain

Anxiety

Maintenance

Depression

Trends in research participant categories and descriptions in abstracts from the International BCI Meeting series, 1999 to 2016

Eddy, B. S., Garrett, S. C., Rajen, S., Peters, B., Wiedrick, J., McLaughlin, D., O’Connor, A., Renda, A., Huggins, J. E. & Fried-Oken, M., Jan 1 2019, In : Brain-Computer Interfaces. 6, 1-2, p. 13-24 12 p.

Research output: Contribution to journal › Article

Brain-Computer Interfaces

Brain computer interface

Disabled Persons

Research

Health Services Research

1 Citation (Scopus)

Use of the PROMIS-29® to identify subgroups of mothers with chronic pain

Stone, A. L., Holley, A., Dieckmann, N. & Wilson, A., May 1 2019, In : Health Psychology. 38, 5, p. 422-430 9 p.

Research output: Contribution to journal › Article

Chronic Pain

Mothers

Pain

Sleep

Proxy

2018

3 Citations (Scopus)

Accuracy and reliability of eye-based vs quadrant-based diagnosis of plus disease in retinopathy of prematurity

Imaging and Informatics in Retinopathy of Prematurity (i-ROP) Research Consortium, Jun 1 2018, In : JAMA Ophthalmology. 136, 6, p. 648-655 8 p.

Research output: Contribution to journal › Article

Retinopathy of Prematurity

Premature Infants

2 Citations (Scopus)

A Model of the Intersection of Pain and Opioid Misuse in Children and Adolescents

Dash, G. F., Wilson, A., Morasco, B. & Feldstein Ewing, S., May 1 2018, (Accepted/In press) In : Clinical Psychological Science.

Research output: Contribution to journal › Article

Opioid Analgesics

Pain

Prescriptions

Public Health

Pediatrics

2 Citations (Scopus)

A prospective study comparing perioperative anxiety and posthospital behavior in children with autism spectrum disorder vs typically developing children undergoing outpatient surgery

Elliott, A. B., Holley, A., Ross, A. C., Soleta, A. O. & Koh, J., Feb 1 2018, In : Paediatric Anaesthesia. 28, 2, p. 142-148 7 p.

Research output: Contribution to journal › Article

Child Behavior

Ambulatory Surgical Procedures

Anxiety

Prospective Studies

Premedication

1 Citation (Scopus)

Automatic analysis of pronunciations for children with speech sound disorders

Dudy, S., Bedrick, S., Asgari, M. & Kain, A., Jul 1 2018, In : Computer Speech and Language. 50, p. 62-84 23 p.

Research output: Contribution to journal › Article

Disorder

Acoustic waves

Application programs

Baseline

Feedback

2 Citations (Scopus)

CARE Scale-7

Ziadni, M., You, D. S., Wilson, A. & Darnall, B. D., Sep 1 2018, In : Clinical Journal of Pain. 34, 9, p. 818-824 7 p.

Research output: Contribution to journal › Article

Self Care

Chronic Pain

Guilt

Pain Clinics

Pain

1 Citation (Scopus)

Characterizing chronic pain in late adolescence and early adulthood: Prescription opioids, marijuana use, obesity, and predictors for greater pain interference

Anastas, T., Colpitts, K., Ziadni, M., Darnall, B. D. & Wilson, A., Nov 1 2018, In : Pain Reports. 3, 6, e700.

Research output: Contribution to journal › Article

Cannabis

Chronic Pain

Opioid Analgesics

Prescriptions

Obesity

Contraceptive knowledge and use among women with intellectual, physical, or sensory disabilities: A systematic review

Horner-Johnson, W., Moe, E., Stoner, R. C., Klein, K. A., Edelman, A., Eden, K., Andresen, E., Caughey, A. & Guise, J-M., Jan 1 2018, (Accepted/In press) In : Disability and Health Journal.

Research output: Contribution to journal › Article

Contraceptive Agents

Contraception

Intellectual Disability

Decision Making

MEDLINE

De novo apparent loss-of-function mutations in PRR12 in three patients with intellectual disability and iris abnormalities

Leduc, M. S., Mcguire, M., Madan-Khetarpal, S., Ortiz, D., Hayflick, S., Keller, K., Eng, C. M., Yang, Y. & Bi, W., Mar 1 2018, In : Human Genetics. 137, 3, p. 257-264 8 p.

Research output: Contribution to journal › Article

Iris

Eye Abnormalities

Intellectual Disability

Mutation

Coloboma

Effects of simulated visual acuity and ocular motility impairments on SSVEP brain-computer interface performance: an experiment with Shuffle Speller

Peters, B., Higger, M., Quivira, F., Bedrick, S., Dudy, S., Eddy, B., Kinsella, M., Memmott, T., Wiedrick, J., Fried-Oken, M., Erdogmus, D. & Oken, B., Jul 3 2018, In : Brain-Computer Interfaces. 5, 2-3, p. 58-72 15 p.

Research output: Contribution to journal › Article

Brain-Computer Interfaces

Brain computer interface

Vision Disorders

Visual Acuity

Experiments

2 Citations (Scopus)

Group Communication Treatment for Individuals with PPA and Their Partners

Mooney, A., Beale, N. & Fried-Oken, M., Jul 1 2018, In : Seminars in Speech and Language. 39, 3, p. 257-269 13 p.

Research output: Contribution to journal › Article

Primary Progressive Aphasia

Communication

Therapeutics

Language

Aphasia

1 Citation (Scopus)

Guidelines for Collaborating With Interpreters in Early Intervention/Early Childhood Special Education

Acar, S. & Blasco, P., Sep 1 2018, In : Young Exceptional Children. 21, 3, p. 170-184 15 p.

Research output: Contribution to journal › Article

Special Education

interpreter

special education

childhood

Guidelines

2 Citations (Scopus)

Intergenerational examination of pain and posttraumatic stress disorder symptoms among youth with chronic pain and their parents

Beveridge, J. K., Neville, A., Wilson, A. & Noel, M., Sep 1 2018, In : Pain Reports. 3, 7, e667.

Research output: Contribution to journal › Article

Post-Traumatic Stress Disorders

Chronic Pain

Parents

Pain

Quality of Life

Longitudinal ophthalmic findings in a child with Helsmoortel-Van der Aa Syndrome

Gale, M. J., Titus, H. E., Harman, G. A., Alabduljalil, T., Dennis, A., Wilson, J. L., Koeller, D., Finanger, E., Blasco, P., Chiang, P-W., Karr, D. & Yang, P., Jun 1 2018, In : American Journal of Ophthalmology Case Reports. 10, p. 244-248 5 p.

Research output: Contribution to journal › Article

Vertebrate Photoreceptor Cells

Optical Coherence Tomography

Cerebral Palsy

Intellectual Disability

Differential Diagnosis

5 Citations (Scopus)

Longitudinal Study of Bladder Continence in Patients with Spina Bifida in the National Spina Bifida Patient Registry

Liu, T., Ouyang, L., Thibadeau, J., Wiener, J. S., Routh, J. C., Castillo, H., Castillo, J., Freeman, K., Sawin, K. J., Smith, K., Van Speybroeck, A. & Valdez, R., Jan 1 2018, (Accepted/In press) In : Journal of Urology.

Research output: Contribution to journal › Article

Spinal Dysraphism

Longitudinal Studies

Registries

Urinary Bladder

Meningomyelocele

3 Citations (Scopus)

Mobile technology to support lexical retrieval during activity retell in primary progressive aphasia

Mooney, A., Bedrick, S., Noethe, G., Spaulding, S. & Fried-Oken, M., Jun 3 2018, In : Aphasiology. 32, 6, p. 666-692 27 p.

Research output: Contribution to journal › Article

Primary Progressive Aphasia

speech disorder

Communication

Technology

communication

Mother-Child Interactive Behaviors and Cognition in Preschoolers Born Preterm and Full Term

Erickson, S. J., Duvall, S., MacLean, P. C., Tonigan, J. S., Ohls, R. K. & Lowe, J. R., Jan 1 2018, (Accepted/In press) In : Journal of Child and Family Studies.

Research output: Contribution to journal › Article

Child Behavior

Cognition

cognition

Mothers

Cues

Optimizing Neurocritical Care Follow-Up Through the Integration of Neuropsychology

Dodd, J. N., Hall, T., Guilliams, K., Guerriero, R. M., Wagner, A., Malone, S., Williams, C. N., Hartman, M. E. & Piantino, J., Jan 1 2018, (Accepted/In press) In : Pediatric Neurology.

Research output: Contribution to journal › Article

Neuropsychology

Aftercare

Critical Care

Patient Care

Parents

Parents training parents: Lessons learned from a study of reciprocal imitation training in young children with autism spectrum disorder

Hall, T., Mastel, S., Nickel, R. & Wainer, A., Jan 1 2018, (Accepted/In press) In : Autism.

Research output: Contribution to journal › Article

Parents

Autistic Disorder

Workflow

Therapeutics

Autism Spectrum Disorder

2 Citations (Scopus)

Quality-adjusted life years (QALY) for 15 chronic conditions and combinations of conditions among US adults aged 65 and older

Jia, H., Lubetkin, E. I., Barile, J. P., Horner-Johnson, W., DeMichele, K., Stark, D. S., Zack, M. M. & Thompson, W. W., Aug 1 2018, In : Medical Care. 56, 8, p. 740-746 7 p.

Research output: Contribution to journal › Article

Quality-Adjusted Life Years

Arthritis

Heart Failure

Hypertension

Sciatica

Risk factors associated with invasive orthopaedic interventions in males with haemophilia enrolled in the Universal Data Collection program from 2000 to 2010

the Hemophilia Treatment Center Network (HTCN) Study Investigators, Nov 1 2018, In : Haemophilia. 24, 6, p. 964-970 7 p.

Research output: Contribution to journal › Article

Hemophilia A

Orthopedics

Arthrodesis

Arthroplasty

Multivariate Analysis

1 Citation (Scopus)

Single (Aim)-minded strategies for demonstrating value to payers for youth with medical complexity

Harris, M., Teplitsky, L., Nagra, H., Spiro, K. & Wagner, D. V., Jun 1 2018, In : Clinical Practice in Pediatric Psychology. 6, 2, p. 152-163 12 p.

Research output: Contribution to journal › Article

Child Care

Delivery of Health Care

Health

Patient Acceptance of Health Care

Economics

8 Citations (Scopus)

Subtyping cognitive profiles in Autism Spectrum Disorder using a Functional Random Forest algorithm

Feczko, E., Balba, N. M., Miranda Dominguez, O., Cordova, M., Karalunas, S., Irwin, L., Demeter, D. V., Hill, A. P., Langhorst, B. H., Grieser Painter, J., Van Santen, J., Fombonne, E., Nigg, J. & Fair, D., May 15 2018, In : NeuroImage. 172, p. 674-688 15 p.

Research output: Contribution to journal › Article

Brain

Chi-Square Distribution

Interpersonal Relations

Automatic Data Processing

Autism Spectrum Disorder

2 Citations (Scopus)

The CALI-9: A brief measure for assessing activity limitations in children and adolescents with chronic pain

Holley, A., Zhou, C., Wilson, A., Hainsworth, K. & Palermo, T. M., Jan 1 2018, In : Pain. 159, 1, p. 48-56 9 p.

Research output: Contribution to journal › Article

Chronic Pain

Pain

Parents

Pain Clinics

Aptitude

The genetics of retinopathy of prematurity: a model for neovascular retinal disease

Imaging and Informatics in ROP Research Consortium, Sep 1 2018, In : Ophthalmology. Retina. 2, 9, p. 949-962 14 p.

Research output: Contribution to journal › Article

Retinal Diseases

Retinopathy of Prematurity

Retinal Vessels

Vascular Diseases

Premature Infants

1 Citation (Scopus)

Two de novo novel mutations in one SHANK3 allele in a patient with autism and moderate intellectual disability

Zhu, W., Li, J., Chen, S., Zhang, J., Vetrini, F., Braxton, A., Eng, C. M., Yang, Y., Xia, F., Keller, K., Okinaka-Hu, L., Lee, C., Holder, J. L. & Bi, W., Jan 1 2018, (Accepted/In press) In : American Journal of Medical Genetics, Part A.

Research output: Contribution to journal › Article

Autistic Disorder

Intellectual Disability

Exons

Language

Alleles