Institute on Development & Disability

Research Output

2020

Addressing the search challenges of precision medicine with information retrieval systems and physician readers

Hollis, K. F., Roberts, K., Bedrick, S. & Hersh, W. R., Jun 16 2020, Digital Personalized Health and Medicine - Proceedings of MIE 2020. Pape-Haugaard, L. B., Lovis, C., Madsen, I. C., Weber, P., Nielsen, P. H. & Scott, P. (eds.). IOS Press, p. 813-817 5 p. (Studies in Health Technology and Informatics; vol. 270).

Research output: Chapter in Book/Report/Conference proceedingConference contribution

A Pilot Study Examining Neural Response to Pain in Adolescents With and Without Chronic Pain

Jones, S. A., Cooke, H. E., Wilson, A. C., Nagel, B. J. & Holley, A. L., Jan 15 2020, In : Frontiers in Neurology. 10, 1403.

Research output: Contribution to journalArticle

Open Access
1 Scopus citations

Autism and attention-deficit/hyperactivity disorders and symptoms in children with neurofibromatosis type 1

Morotti, H., Mastel, S., Keller, K., Barnard, R. A., Hall, T., O'Roak, B. J. & Fombonne, E., 2020, (Accepted/In press) In : Developmental Medicine and Child Neurology.

Research output: Contribution to journalArticle

2 Scopus citations

Contextual risk among adolescents receiving opioid prescriptions for acute pain in pediatric ambulatory care settings

Dash, G. F., Feldstein Ewing, S., Murphy, C., Hudson, K. A. & Wilson, A. C., May 2020, In : Addictive Behaviors. 104, 106314.

Research output: Contribution to journalArticle

Daily Associations between Child and Parent Psychological Factors and Home Opioid Use in Youth with Sickle Cell Disease

Stone, A. L., Williams, Z., McNaull, M., Wilson, A. C. & Karlson, C. W., Jan 1 2020, In : Annals of behavioral medicine : a publication of the Society of Behavioral Medicine. 54, 1, p. 61-66 6 p.

Research output: Contribution to journalArticle

Default mode network connectivity is related to pain frequency and intensity in adolescents

Jones, S. A., Morales, A. M., Holley, A. L., Wilson, A. C. & Nagel, B. J., 2020, In : NeuroImage: Clinical. 27, 102326.

Research output: Contribution to journalArticle

Open Access

Detecting rare diseases in electronic health records using machine learning and knowledge engineering: Case study of acute hepatic porphyria

Cohen, A. M., Chamberlin, S., Deloughery, T., Nguyen, M., Bedrick, S., Meninger, S., Ko, J. J., Amin, J. J., Wei, A. J. & Hersh, W., Jul 2020, In : PloS one. 15, 7 July, e0235574.

Research output: Contribution to journalArticle

Open Access

Jpp student journal club commentary: Caregiver-child discrepancies in pediatric chronic pain: Different perspectives on symptoms

Gaultney, W. M. & Wilson, A. C., May 1 2020, In : Journal of pediatric psychology. 45, 4, p. 370-372 3 p.

Research output: Contribution to journalComment/debate

Open Access

Long-Term Variability of Distortion-Product Otoacoustic Emissions in Infants and Children and Its Relation to Pediatric Ototoxicity Monitoring

Konrad-Martin, D., Knight, K., McMillan, G. P., Dreisbach, L. E., Nelson, E. & Dille, M., Mar 1 2020, In : Ear and hearing. p. 239-253 15 p.

Research output: Contribution to journalArticle

1 Scopus citations
3 Scopus citations

Miscarriage Occurrence and Prevention Efforts by Disability Status and Type in the United States

Dissanayake, M. V., Darney, B. G., Caughey, A. B. & Horner-Johnson, W., Mar 2020, In : Journal of Women's Health. 29, 3, p. 345-352 8 p.

Research output: Contribution to journalArticle

Open Access

Nonclinical Factors in Autism Diagnosis: Results From a National Health Care Provider Survey

Azim, A., Rdesinski, R. E., Phelps, R. & Zuckerman, K., Aug 1 2020, In : Journal of developmental and behavioral pediatrics : JDBP. 41, 6, p. 428-435 8 p.

Research output: Contribution to journalArticle

No Sex Differences in Cognitive Ability in Young Children with Autism Spectrum Disorder

Duvall, S. W., Huang-Storms, L., Presmanes Hill, A., Myers, J. & Fombonne, E., May 1 2020, In : Journal of autism and developmental disorders. 50, 5, p. 1770-1785 16 p.

Research output: Contribution to journalArticle

3 Scopus citations

Pain, Physical, and Psychosocial Functioning in Adolescents at Risk for Developing Chronic Pain: A Longitudinal Case-Control Stusdy

Wilson, A. C., Holley, A. L., Stone, A., Fales, J. L. & Palermo, T. M., Mar 1 2020, In : Journal of Pain. 21, 3-4, p. 418-429 12 p.

Research output: Contribution to journalArticle

Post-Intensive-Care Syndrome for the Pediatric Neurologist

Hartman, M. E., Williams, C. N., Hall, T. A., Bosworth, C. C. & Piantino, J. A., 2020, (Accepted/In press) In : Pediatric Neurology.

Research output: Contribution to journalReview article

2 Scopus citations

Post-intensive care syndrome in a cohort of infants & young children receiving integrated care via a pediatric critical care & neurotrauma recovery program: A pilot investigation

Hall, T. A., Leonard, S., Bradbury, K., Holding, E., Lee, J., Wagner, A., Duvall, S. & Williams, C. N., 2020, (Accepted/In press) In : Clinical Neuropsychologist.

Research output: Contribution to journalArticle

Post-traumatic Headache After Pediatric Traumatic Brain Injury: Prevalence, Risk Factors, and Association With Neurocognitive Outcomes

McConnell, B., Duffield, T., Hall, T., Piantino, J., Seitz, D., Soden, D. & Williams, C., Jan 1 2020, In : Journal of child neurology. 35, 1, p. 63-70 8 p.

Research output: Contribution to journalArticle

1 Scopus citations

Prevention of cisplatin-induced ototoxicity in children and adolescents with cancer: a clinical practice guideline

Freyer, D. R., Brock, P. R., Chang, K. W., Dupuis, L. L., Epelman, S., Knight, K., Mills, D., Phillips, R., Potter, E., Risby, D., Simpkin, P., Sullivan, M., Cabral, S., Robinson, P. D. & Sung, L., Feb 2020, In : The Lancet Child and Adolescent Health. 4, 2, p. 141-150 10 p.

Research output: Contribution to journalReview article

2 Scopus citations

Prolonged postpartum length of hospital stay among women with disabilities

Horner-Johnson, W., Darney, B., Biel, F. M. & Caughey, A. B., Jan 1 2020, (Accepted/In press) In : Disability and Health Journal. 100934.

Research output: Contribution to journalArticle

Sleep Measure Validation in a Pediatric Neurocritical Care Acquired Brain Injury Population

Poppert Cordts, K. M., Hall, T. A., Hartman, M. E., Luther, M., Wagner, A., Piantino, J., Guilliams, K. P., Guerriero, R. M., Jara, J. & Williams, C. N., Aug 1 2020, In : Neurocritical Care. 33, 1, p. 196-206 11 p.

Research output: Contribution to journalArticle

2 Scopus citations

Sleep-Wake Disturbances After Acquired Brain Injury in Children Surviving Critical Care

Williams, C. N., Hartman, M. E., McEvoy, C. T., Hall, T. A., Lim, M. M., Shea, S. A., Luther, M., Guilliams, K. P., Guerriero, R. M., Bosworth, C. C. & Piantino, J., Feb 2020, In : Pediatric Neurology. 103, p. 43-51 9 p.

Research output: Contribution to journalArticle

1 Scopus citations

Spatial transformer spectral kernels for deformable image registration

Safadi, E. A. & Song, X., 2020.

Research output: Contribution to conferencePaper

System overload: Interventions that target the multiple systems in which youth with type 1 diabetes live

Barry-Menkhaus, S. A., Koskela, N., Wagner, D. V., Burch, R. & Harris, M. A., Jan 1 2020, Behavioral Diabetes: Social Ecological Perspectives for Pediatric and Adult Populations. Springer International Publishing, p. 139-152 14 p.

Research output: Chapter in Book/Report/Conference proceedingChapter

The Role of Caregiver-Reported Risks in Predicting Adverse Pediatric Outcomes

Vaz, L. E., Wagner, D. V., Jungbauer, R. M., Ramsey, K. L., Jenisch, C., Koskela-Staples, N., Everist, S., Austin, J., Harris, M. A. & Zuckerman, K., Sep 1 2020, In : Journal of pediatric psychology. 45, 8, p. 957-970 14 p.

Research output: Contribution to journalArticle

TREC-COVID: Rationale and Structure of an Information Retrieval Shared Task for COVID-19

Roberts, K., Alam, T., Bedrick, S., Demner-Fushman, D., Lo, K., Soboroff, I., Voorhees, E., Wang, L. L. & Hersh, W. R., May 4 2020, (Accepted/In press) In : Journal of the American Medical Informatics Association : JAMIA.

Research output: Contribution to journalArticle

Open Access
2019

Adverse Childhood Experiences in Mothers With Chronic Pain and Intergenerational Impact on Children

Dennis, C. H., Clohessy, D. S., Stone, A. L., Darnall, B. D. & Wilson, A. C., Oct 2019, In : Journal of Pain. 20, 10, p. 1209-1217 9 p.

Research output: Contribution to journalArticle

3 Scopus citations

All systems go: An ecological perspective of behavioral health for youth with type 1 diabetes

Wagner, D. V., Koskela-Staples, N., Harris, M. & Barry, S. A., Mar 1 2019, In : Families, Systems and Health. 37, 1, p. 10-29 20 p.

Research output: Contribution to journalArticle

1 Scopus citations

An online community of practice to improve intervention for individuals with complex communication needs

Quinn, E. D., Cook, A. & Rowland, C., Apr 3 2019, In : AAC: Augmentative and Alternative Communication. 35, 2, p. 142-147 6 p.

Research output: Contribution to journalArticle

Challenges and opportunities in augmentative and alternative communication: Research and technology development to enhance communication and participation for individuals with complex communication needs

Light, J., McNaughton, D., Beukelman, D., Fager, S. K., Fried-Oken, M., Jakobs, T. & Jakobs, E., Jan 2 2019, In : AAC: Augmentative and Alternative Communication. 35, 1, p. 1-12 12 p.

Research output: Contribution to journalComment/debate

14 Scopus citations
4 Scopus citations

Differences in continence rates in individuals with spina bifida based on ethnicity

Smith, K. A., Liu, T., Freeman, K. A., Betz, C., Clayton, G. H., Castillo, H., Castillo, J., Tu, D., Speybroeck, A. V. & Walker, W. O., 2019, In : Journal of Pediatric Rehabilitation Medicine. 12, 4, p. 361-368 8 p.

Research output: Contribution to journalArticle

Differences in Prenatal Care by Presence and Type of Maternal Disability

Horner-Johnson, W., Biel, F. M., Caughey, A. B. & Darney, B. G., Mar 2019, In : American journal of preventive medicine. 56, 3, p. 376-382 7 p.

Research output: Contribution to journalArticle

4 Scopus citations

Early Prediction of Breast Cancer Therapy Response using Multiresolution Fractal Analysis of DCE-MRI Parametric Maps

Machireddy, A., Thibault, G., Tudorica, L. A., Afzal, A., Mishal, M., Kemmer, K., Naik, A., Troxell, M., Goranson, E., Oh, K., Roy, N., Jafarian, N., Holtorf, M., Huang, W. & Song, X., Mar 1 2019, In : Tomography (Ann Arbor, Mich.). 5, 1, p. 90-98 9 p.

Research output: Contribution to journalArticle

Open Access
3 Scopus citations

Ethical implications for providers regarding cannabis use in children with autism spectrum disorders

Duvall, S. W., Lindly, O., Zuckerman, K., Msall, M. E. & Weddle, M., Feb 2019, In : Pediatrics. 143, 2, e20180558.

Research output: Contribution to journalArticle

4 Scopus citations
2 Scopus citations

Improving ASR systems for children with autism and language impairment using domain-focused DNN transfer techniques

Gale, R., Chen, L., Dolata, J., Van Santen, J. & Asgari, M., Jan 1 2019, In : Proceedings of the Annual Conference of the International Speech Communication Association, INTERSPEECH. 2019-September, p. 11-15 5 p.

Research output: Contribution to journalConference article

2 Scopus citations

Internet networks as a source of social support for women with mobility disabilities during pregnancy

Peterson-Besse, J. J., Knoll, J. E. & Horner-Johnson, W., Jan 1 2019, In : Disability and Health Journal.

Research output: Contribution to journalArticle

Interventions for cisplatin-induced hearing loss in children and adolescents with cancer

Freyer, D. R., Brock, P., Knight, K., Reaman, G., Cabral, S., Robinson, P. D. & Sung, L., Aug 2019, In : The Lancet Child and Adolescent Health. 3, 8, p. 578-584 7 p.

Research output: Contribution to journalReview article

2 Scopus citations

Looking back while moving forward: a justice-based, intersectional approach to research on contraception and disability

Wu, J., Braunschweig, Y., Harris, L. H., Horner-Johnson, W., Ernst, S. D. & Stevens, B., May 2019, In : Contraception. 99, 5, p. 267-271 5 p.

Research output: Contribution to journalComment/debate

5 Scopus citations

New and emerging access technologies for adults with complex communication needs and severe motor impairments: State of the science

Koch Fager, S., Fried-Oken, M., Jakobs, T. & Beukelman, D. R., Jan 2 2019, In : AAC: Augmentative and Alternative Communication. 35, 1, p. 13-25 13 p.

Research output: Contribution to journalArticle

9 Scopus citations

Parent Factors are Associated with Pain and Activity Limitations in Youth with Acute Musculoskeletal Pain

Clementi, M. A., Faraji, P., Poppert Cordts, K., MacDougall, K., Wilson, A., Palermo, T. M. & Lewandowski Holley, A., Mar 1 2019, In : Clinical Journal of Pain. 35, 3, p. 222-228 7 p.

Research output: Contribution to journalArticle

Parents training parents: Lessons learned from a study of reciprocal imitation training in young children with autism spectrum disorder

Hall, T. A., Mastel, S., Nickel, R. & Wainer, A., Aug 1 2019, In : Autism. 23, 6, p. 1601-1606 6 p.

Research output: Contribution to journalArticle

Postintensive Care Syndrome in Pediatric Critical Care Survivors: Therapeutic Options to Improve Outcomes After Acquired Brain Injury

Williams, C. N., Hartman, M. E., Guilliams, K. P., Guerriero, R. M., Piantino, J. A., Bosworth, C. C., Leonard, S. S., Bradbury, K., Wagner, A. & Hall, T. A., Oct 1 2019, In : Current Treatment Options in Neurology. 21, 10, 49.

Research output: Contribution to journalReview article

1 Scopus citations

PRISM: a brief screening tool to identify risk in parents of youth with chronic pain

Simons, L. E., Holley, A., Phelps, E. & Wilson, A., Feb 1 2019, In : Pain. 160, 2, p. 367-374 8 p.

Research output: Contribution to journalArticle

10 Scopus citations

Shining a Light on Reproductive Health Care Needs of Women with Disabilities

Horner-Johnson, W., Jul 1 2019, In : Journal of women's health (2002). 28, 7, p. 888-889 2 p.

Research output: Contribution to journalArticle

Somatic Symptoms in Pediatric Patients With Chronic Pain: Proposed Clinical Reference Points for the Children's Somatic Symptoms Inventory (Formerly the Children's Somatization Inventory)

Stone, A. L., Walker, L. S., Heathcote, L. C., Hernandez, J. M., Basch, M. C., Wilson, A. C. & Simons, L. E., Aug 2019, In : Journal of Pain. 20, 8, p. 932-940 9 p.

Research output: Contribution to journalArticle

4 Scopus citations

The (Parental) Whole Is Greater Than the Sum of Its Parts: A Multifactorial Model of Parent Factors in Pediatric Chronic Pain

Poppert Cordts, K. M., Stone, A. L., Beveridge, J. K., Wilson, A. C. & Noel, M., Jul 2019, In : Journal of Pain. 20, 7, p. 786-795 10 p.

Research output: Contribution to journalArticle

8 Scopus citations